April 2010
25 posts
DAY 13 OF TRANSPLANT TODAY MIKE WAS FEELING VERY WEEK, BEING HE HAD NO SLEEP AND WAS RUNNING A FEVER, HE COULD HARDLY WALK. THE DOCTORS PUT HIM BACK ON STEROIDS FOR 3 MORE DAYS AND HOPING TO CALM DOWN THE PRE ENGRAFTMENT OF THE CORDS. BEING HE IS ON STEROIDS NOW, HE WILL FEEL A LOT BETTER AND HOPEFULLY WHEN HE FINISHES THE 3 DAYS HE WILL CONTINUE TO HAVE NO FEVER. HE DRANK A WHOLE BOTTLE OF...
March 2010
16 posts
DAY 11 OF TRANSPLANT A TOTAL OF 19 DAYS IN HOSPITAL TODAY MIKE WAS FEELING VERY SWOLLEN, HE GAINED ABOUT 9 POUNDS IN WATER WEIGHT. THE DOCTORS PUT HIM BACK ON LASEX SO THAT HE CAN RELEASE AS MUCH WATER WEIGHT AS HE CAN. THE DOCTORS HEARD A LITTLE FLUID ON THE LUNGS, THAT IS FROM THE WATER WEIGHT AS WELL AS THE MEDS HE IS ON.
TODAY WAS THE LAST DOSE OF STEROIDS, HOPING NO FEVER WILL COME BACK .
DAY 10 OF TRANSPLANT TODAY WAS A BETTER DAY. MIKE HAD NO FEVERS ALL NIGHT AND WAS ABLE TO SLEEP. THE STEROIDS THAT HE WAS GIVEN REALLY HELPED THE FEVER. HE WILL BE GIVEN THE STEROIDS FOR ANOTHER DAY AND THEN WE HAVE TO PRAY THE FEVERS DON’T COME BACK.
TODAY HE HAD A LITTLE PROBLEM WITH HIS EYES, HE WAS SEEING BLURRY AND WHEN THE DOCTOR EXAMINED HIM, HE SAID THAT’S FROM ALL THE MEDS, CHEMO...
DAY 7 TODAY WAS A HORRIBLE DAY AS WELL, MIKE WAS UP ALL NIGHT, MAYBE SLEPT FOR 2 HOURS, HIS FEVER WAS VERY HIGH AND HE COULD NOT GET OUT OF BED TODAY. BEING HE HAD HIGH LIVER ENZYMES BEFORE TRANSPLANT, THE DOCTOR DOES NOT WANT TO GIVE TYLENOL UNLESS THE FEVER IS 103. HE DID REACH 103 TODAY AND WAS GIVEN THE TYLENOL, THIS LOWERED THE FEVER FOR ABOUT 1 HOUR, IN THIS HOUR I GOT HIM OUT OF BED AND...
Day 5
DAY 5 OF TRANSPLANT. TODAY SEEMED LIKE A BETTER DAY. MIKE WAS ABLE TO RELEASE SOME WATER, HE WAS GIVEN A STRONGER DOSE OF THE LASIX. HE WAS UP ALL NIGHT CAUSE IT MAKES YOUR BLADDER CRAZY. HE STILL HAS THE SWELLING, BUT NOT AS BAD. HE COUNTS ARE ZERO, AND THAT’S WHY IT IS SO IMPORTANT THAT HE DOES NOT GET ANY INFECTIONS OR FEVERS CAUSE IT CAN BE DANGEROUS, KEEP OUR FINGERS CROSSED....
DAY 4 TODAY WAS A DAY OF QUESTIONS, MIKE HAD A BAD NIGHT, HE WAS IN PAIN AND WAS NOTHING WAS HELPING SO THEY GAVE HIM MORPHINE, THEY LIKE TO TRY MILDER PAIN MEDS BEFORE GIVING SUCH A STRONG ONE. HIS WAS EVEN MORE SWOLLEN THEN YESTERDAY HE GAINED 8 POUNDS IN 2 DAYS OF WATER. THEY INCREASED THE LASIX WHICH MAKES YOU URINATE TO RELEASE SOME OF THE LIQUID. HE IS VERY SWOLLEN AND HE IS BURNT FROM...
MARCH 20
DAY 2 OF TRANSPLANT TODAY WAS A VERY BAD DAY FOR MIKE. HE IS GETTING WEAKER BY THE DAY AND HE IS NOT EATING OR DRINKING . THE DOCTORS HAD TO GIVE HIM NUTRITION IN IV. THIS IS THE PROTOCOL WITH THE CORD BLOOD PATIENTS BUT VERY SCARY KNOWING HOW MIKE LOVES TO EAT. THEY SAY HE WOULD MOST LIKELY BE ON THIS NUTRITION FOR A FEW WEEKS. HIS SKIN IS VERY RED, IT LOOKS LIKE HE HAS BAD SUNBURN...
TODAY, MIKE HAD PAINS IN THE LEGS AND A LITTLE NAUSEA. TODAY SEEMED LIKE A BETTER DAY ! THE DOCTORS CAME IN CHECKED HIM AND SAID EVERYTHING SEEMS GOOD. HIS COUNTS ARE WHERE THEY SHOULD BE AND HIS VITALS ARE GREAT.
TOMORROW IS THE BIG DAY , TRANSPLANT DAY! MIKE IS IN GOOD SPIRITS AND THIS WILL GET HIM THROUGH THIS. PLEASE EVERYBODY PRAY FOR US THIS WEEK COMING UP IS SO IMPORTANT!
MIKE HAD A ROUGH NIGHT, VERY NAUSEOUS, THE NURSES GAVE MEDICATIONS FOR HIS NAUSEOUS BUT IT MADE HIM VERY TIRED, HE GOT RADIATION FOR 15 MINUTES IN THE MORNING AND THEN AGAIN IN THE EVENING .
TODAY WAS A DAY THAT HE JUST WANTED TO REST. MIKE WAS VERY HAPPY TOWARDS THE EARLY EVENING, THEY UPGRADED HIS ROOM TO A SUITE-BEAUTIFUL VIEWS & VERY LARGE. HE WAS VERY HAPPY WITH HIS NEW ROOM KNOWING HE...
MIKE HAD A ROUGH NIGHT, VERY NAUSEOUS, THE NURSES GAVE MEDICATIONS FOR HIS NAUSEOUS BUT IT MADE HIM VERY TIRED, HE GOT RADIATION FOR 15 MINUTES IN THE MORNING AND THEN AGAIN IN THE EVENING .
TODAY WAS A DAY THAT HE JUST WANTED TO REST. MIKE WAS VERY HAPPY TOWARDS THE EARLY EVENING, THEY UPGRADED HIS ROOM TO A SUITE. BEAUTIFUL VIEWS AND VERY LARGE. HE WAS VERY HAPPY BEING THERE KNOWING HE WILL BE...
1ST DAY OF RADIATION. MIKE WILL BE GETTING RADIATION 2 TIMES A DAY FOR 15 MINUTES . THE RADIATION WILL LAST UNTIL THE DAY OF TRANSPLANT . AS TODAY WAS HIS FIRST TREATMENT HE FELT VERY NAUSEAS , DIZZY , LOSS OF APPETITE, AND VERY TIRED. MEDICATIONS WERE GIVEN TO TRY TO RELIEVE SOME OF THESE DISCOMFORTS.
TODAY WAS CALLED A DAY OF REST, NO CHEMO, MIKE WAS FEELING BETTER THAN YESTERDAY, NO NAUSEA . HE WAS FEELING A LITTLE ANXIOUS BUT THAT IS A SIDE EFFECT OF THE CHEMO. OVERALL HE HAD A BETTER DAY .
KEEP PRAYING THAT EVERYDAY WILL BE LIKE TODAY.
3RD DAY OF CHEMO AND FINAL DAY, MIKE HAD A ROUGH DAY TODAY, HE WAS VOMITING AND FEELING DIZZY , THIS IS THE EFFECTS OF THIS CHEMO . THE NURSES AND DOCTORS GAVE HIM ANTI NAUSEA MEDICATION, IT HELPED A LITTLE .
HE IS VERY TIRED AND ANXIOUS . HE IS TRYING TO SLEEP IT OFF AND HOPING TO WAKE UP TOMORROW FEELING BETTER .
MIKE WAS A BIT TIRED TODAY , AS THEY WAKE HIM UP EVERY 4 HOURS FOR VITALS HE DID NOT HAVE A GOOD NIGHT SLEEP AND TODAY THEY STARTED A STRONGER DOSE CHEMO AND MADE HIM EVEN MORE TIRED.
HE IS SO STRONG AND WAS FIGHTING THE FEELING OF BEING TIRED, HE DID THE BIKE AND DID SOME EXERCISE.
THE DOCTORS CAME IN AND EXAMINED HIM AND SAID EVERYTHING IS LOOKING GREAT SO FAR!
THURSDAY MARCH 11 , 1ST DAY OF CHEMO
MIKE HAD HIS ANTI FUNGAL MEDS , ANTIBIOTICS , CHEMO AND WAS HOOKED UP TO THE POLE THAT WILL BE HIS BEST FRIEND FOR THE ENTIRE STAY, HE WAS VERY UNCOMFORTABLE BEING CONNECTED TO THE POLE ONCE AGAIN. PHYSICAL THERAPY CAME IN AND HE GOT TO SEE THE FLOOR FOR THE FIRST TIME, HE WALKED FAST PASTED TO GET HIS HEART RATE GOING AND THEY WILL GIVE HIM THIS THERAPY ONCE...
Michael Update#2
Hi everyone, We do not have much news to report since there was a delay in Michael’s transplant. He needed to wait until some numbers changed in his blood work. Therefore, he will be admitted March 10th.
In the meantime, today March 7th is Mike’s 35th bday! The birds were chirping and it was a beautiful day for him to enjoy his family. He played outside with the kids and enjoyed...
