June 2010
6 posts
DAY 101 OF TRANSPLANT. YES. MIKE MADE IT !!! WE ARE SO HAPPY THAT MIKE HIT THE 100 DAY MARK. WE STILL HAVE A VERY LONG ROAD AHEAD OF US. MIKE STILL IS FEELING VERY WEAK AND NOT HIMSELF, IT IS GOING TO TAKE TIME BEFORE HE REGAINS HIS STRENGHTH. DR BARKER STARTED TO LOWER THE STEROIDS, BUT SHE SAID IT WILL TAKE ABOUT 2 MONTHS. HE IS ON ALOT OF MEDS WHICH MAKE HIM FEEL VERY UNDER THE...
DAY 92 OF TRANSPLANT. TODAY MIKE HAD NO SWELLING. THE LASIX FINALLY WORKED AND HIS COUNTS WERE GOING UP, DR BARKER WAS RIGHT, IT WAS THE CYCLESPORIN CHEWING UP HIS COUNTS .SHE CANNOT KEEP HIM OFF OF THIS FOREVER SO SHE WILL RESUME THE CYCLESPORIN AS SHE WEANS HIM OFF THE STEROIDS. MIKE IS LOOKING FORWARD AND HOPING HE CONTINUES TO FEEL BETTER FOR FATHER’S DAY SO HE CAN SPEND QUALITY TIME...
DAY 88 OF TRANSPLANT TODAY MIKE WENT TO OUTPATIENT. DR BARKER EXAMINED HIM AND TOOK HIM OFF CYCLESPORIN . SHE BELIEVES CYCLESPORIN IS CHEWING HIS PLATELETS AS WELL AS THE HEMOGLOBIN. THEY WERE EVEN LOWER TODAY, SHE IS HOPING WEDNESDAY THAT THE PLATELET COUNT AND RED BLOODS CELLS WILL INCREASING, BECAUSE THE CYCLESPORIN WAS STOPPED. HIS FEET AND LEGS ARE STILL VERY SWOLLEN, SHE IS NOT...
DAY 86 OF TRANSPLANT. MIKE STILL IS VERY SWOLLEN. JUST STARTED THE LASIKS TODAY AND I ASSUME IT TAKES A FEW DAYS TO KICK IN. WE ARE HOPING THAT THIS PILL WILL RELEASE SOME OF THE WATER THAT HE IS RETAINING. HE IS VERY UNCOMFORTABLE AND HIS LEGS ARE IN PAIN. THE BK VIRUS IS GONE AND IT SEEMS AS SOON AS SOMETHING GOES AWAY ANOTHER PROBLEM ARISES. HAVE’NT POSTED IN A FEW DAYS BECAUSE THERE...
DAY 80 OF TRANSPLANT TODAY WAS A VERY QUITE DAY FOR MIKE ALTHOUGH HE WAS UP ALL NIGHT WITH LEG PAIN. AND HIS WHOLE BODY WAS AILING. HE WAS VERY SWOLLEN AND COULD NOT GET COMFORTABLE. THE DOCTORS LOWERED THE STEROIDS BUT IT TAKES TIME BEFORE HE WILL FEEL A DIFFERENCE.
I HAVE TO CALL THE DOCTOR IN THE MORNING AND FIND OUT WHAT WE CAN DO ABOUT THE SWELLING BECAUSE MIKE CAN BARELY WALK.
DAY 78 OF TRANSPLANT TODAY WE HAD OUTPATIENT. IT WAS A SHORT VISIT BECAUSE THERE WASN’T MUCH GOING ON. WE ARE NOW GOING BACK ON WEDNESDAY, AND HOPEFULLY ONCE A WEEK THEREAFTER. DUE TO THE STEROIDS MIKE’S LEGS ARE VERY SWOLLEN. THE DOCTOR LOWERED THE DOSE TODAY SO WE’LL SEE IF THE SWELLING GOES AWAY. THE BK VIRUS IS STILL A BIG PROBLEM, BUT THE PAIN MEDS ARE DOING THE JOB FOR NOW. WE...
